the mighty max update: Day 7 "No Tech Boot Camp"

Thursday, July 19, 2012

Day 7 "No Tech Boot Camp"

First week of our no tech boot camp has been great! I am amazed at how easily Max has adapted to not having any videos or iPad time. He still asks occasionally but does so with such sweetness.

Books have become a favorite again (awesome!) and he is more willing to try some new activities. I haven't seen a huge change in his behaviors but overall he has been fairly happy. (Ok, minus today when he tested everyone with many fits...perhaps he thought the boot camp was only lasting one week. Nope, sorry kiddo...we have another week to go!)

Max loves hanging out in his little comfy chair reading his books...so cute!

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

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