the mighty max update: the cutest lil' decorator

Ok, the photos aren't the best (haven't figured out our new camera quite yet)...but the moment absolutely was. Max was VERY into decorating our Christmas tree this year.

First, he just loved the lights...no surprise considering he is obsessed with turning lights on and off everywhere we go.

Then, he really showed off with the ornaments. He really got the concept of putting ornaments on the tree, and he was able to do it with some help. And each and every time, he would look back and me and Grammy (so glad you were there!) with such pride and joy. It was awesome, truly awesome!

So much fun Maxwell...thanks!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Saturday, December 12, 2009

the cutest lil' decorator

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