the mighty max update: reading

Wednesday, February 6, 2013

reading

My kiddo is a reading superstar....it is just awesome to watch him point to the words and then sign so beautifully. His little fingers (and that complex brain of his!) are quite magical!

This picture was taken yesterday during small group / worktime in his Life Skills class. On the right is his signing aide and on the left is his school speech therapist who joins in for reading sometimes. And of course on the left is also the wonderful Miss Eva...one of our favorite school buddies!

GO MAX GO!

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org