the mighty max update: first construction site visit

Growing up with a dad as an engineer, we spent a lot of time visiting his various construction sites. I have very vivid, fond memories of watching the projects develop step by step.

So it was fun to share that with Max this week. Dad took us to see the new performing arts center under construction, and Max just loved all the noise and lights...especially the grinder's "fireworks." He could have watched that all day! (Dad actually started up his grinder at home just for Max!)

Thanks Dad for the grand tour!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Thursday, December 29, 2011

first construction site visit

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