the mighty max update: physical therapy can be fun!

Thursday, August 11, 2011

physical therapy can be fun!

In the recent year or so, physical therapy has taken a back burner in Max's life due to other more pressing challenges. However, some concerns have been on my mind lately so I touched base with Max's PT. Many individuals with CHARGE have scoliosis, low muscle tone and other muscle irregularities.

It does appear that Max has developed mild scoliosis...perhaps due to a tightness on the right side of the neck (sometimes known as torticollis) that Jill (our amazing PT) also noticed right away. Max also is presenting issues with range of motion...including his neck, shoulders and chest (perhaps due to the open heart surgery). Fortunately Jill was encouraging and came up with some great ideas to increase Max's strength and flexibility.

Looking forward to working on this...AND having some fun while doing so! :)

2 comments:

Kurby Family said...: Sounds like this type of "work" is right up Max's alley...looks like he will be having a lot of fun as he gets the strength and flexibility exercises he needs. Looks like he might be in Cirrque Du Soleil soon!; August 12, 2011 at 2:16 PM
Crystal M. said...: Looks like lots of fun!!! Now thats therapy!; September 23, 2011 at 11:07 AM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org