the mighty max update: max's girl

Mighty Max has a special friend, Auspacia. They were briefly in preschool together, and now we share a caregiver one afternoon a week.

At first, Max wasn't too keen on the idea of sharing his caregiver. But now he has fallen in love with "Cia" and loves to tickle and play with her...and she just laughs and laughs. They are sooooo cute together! :)

"Ready to play Cia? Oh come on, you know you are!"

"The shoes are coming off. It's gametime!"

"And where do you think you are going girlfriend?"

"Gotcha!"

"Come on people...can't the girl and I have a little alone time?"

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Monday, May 30, 2011

max's girl

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