the mighty max update: max's very favorite!

Max enjoyed this ride last year, but oh my goodness did he LOVE, LOVE, LOVE it this year! With the help of some friends, he went on it about ten times within just a few hours. He kept asking for it...even when we were in line for others. Then we were in line, he had a very difficult time waiting. He actually tried to move some kiddos out of the way so he could get first in line!

(This ride doesn't look too scary, but it really is fast! Each time I was caught off guard with the quick spins and intense speed!)

"Roller coaster" (moving his hand up and down like a roller coaster) is my new favorite sign for sure. So great to see him learn it so quickly! Then he also used "fast" and "fun." I was beyond excited!

Here are some cute pictures of Aunt Eliz on the ride with Mighty Max:

Later in the night, we went to see the light show. While everyone else was quite impressed with it, Max started signing "roller coaster" again so back we went to the rides.

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Tuesday, August 24, 2010

max's very favorite!

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