the mighty max update: Christmas Party

Maxwell: "Hey, is this thing real?"
Santa: "Why yes it is young man. But seriously, if you don't stop pulling it right now, I'll pull the ears off that blue dog of yours. Ho ho ho."

Last weekend we attended our P2P Christmas Party. P2P (Parent to Parent) is a support group for parents of children with disabilities and medical challenges. This is the first year that Maxwell was able to really explore and enjoy himself completely. It was awesome!

For the first hour, Max and a few buddies enjoyed "playing" basketball. So cute! He was very determined to keep control of the red ball.

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Sunday, December 20, 2009

Christmas Party

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