Thursday, September 3, 2009

chronic lung disease

Oh denial is a wonderful thing, isn't it?

Just last week, I met with Max's PCP for two hours. Included in the 15 items to be discussed was the daily inhaler/s. (Other issues included the MRIs, new medications, surgeries, sleeping issues, etc.) His pulmonologist and I had recently discussed the possibility of stopping them for a short time to test Maxwell. Max's PCP didn't quite agree and stressed the importance of the inhalers for a kiddo with chronic lung disease...especially going into the fall/school/germs.

As I was giving him an inhaler at 2am this morning (after Max woke up coughing so much that he vomited everywhere), I thought of Max's doctor and smiled. And just now as I was giving him an inhaler because of his heavy wheezing...I smiled. Ok doc, you were right. The lungs aren't quite yet what we want them to be. Got it.


Amy, Mike and Ben Russo said...

Not denial, you were just hopeful :

hannah m said...

I like what Amy said about it being hopeful, not denial! I concur!

I am so very hopeful for a healthy fall for Mighty Max!

Kurby Family said...

Its horrible when they are right, but you were still the one to recognize that. Mom's do know best, and push their kids for the better, and you are awesome at helping Max see how great he is.

mama to jayna and ryen said...

OH sister, i understand this completely. Recently, I thought it might be a good idea to take Jayna's G-tube out...the RN looked at me and sort of shook her head. Then last week, we had to tube almost all of her calories...sigh.

Kristi said...

I have to echo Hannah about Amy's comment... :-)
So sorry that he threw up everywhere... poor Max... poor Mommy!

And... aren't Grammy's the BEST, Max?! :-)
The chocolate is a great idea for potty bootcamp! I think I will try that! :-)
(Preston was interested in the potty... but now, not as much... and the animal tattoos he loved when we started bootcamp are not doing the trick anymore!)

Kristi said...

So, Amy... I had to comment here again - - we had a "Chronic Lung Disease" story that occurred last week. What I didn't write in the blog post yesterday was how I immediately thought of you and Max.

It's amazing to me how our stories on this journey run parallel, intersect, etc. While the big picture looks different on some levels, there are so many similarities and so many times that you just sit there and think, "I so GET what she's saying."