the mighty max update: meet cy

Saturday, August 1, 2009

meet cy

Oh my goodness...Max has yet another wonderful friend!

Cy and Max had so much fun together at the CHARGE conference. It was fantastic! Cy and his sister, Mary Catherine, have two brothers with CHARGE (yes it's rare, but it does happen), so they are exceptionally knowledgeable, compassionate and kind with everyone. But they definitely have a sweet spot reserved just for Mighty Max and always were so excited to see him.

Their mom actually texted last week that Cy is already missing Max big time! How cool is that?
Oh Cy, are you SURE you don't want to come out here and live with us!?!? :)

1 comment:

Carolyn said...: Max, looks like you have a friend there. Hope you two can hook up soon.; August 4, 2009 at 3:40 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org