So much fun! There were approximately 15-20 of us...families of Maya, Burke, Evan, Ryoto and us. (Ryoto is our lil' friend with CHARGE who passed away two years ago after heart surgery, but his wonderful family still keeps in touch and participates in our get togethers.)
I cannot put into words how great and comfortable it is to be with others who simply "get it." No explaining...no false words of encouragement...no pity...no false bravado. Never having to leave the room to give myself a pep talk..."it'll be ok Amy, it'll be ok." Just smiles, tears, love, pride, support, and joy sharing the highs and lows of this journey we are on together. We feel truly blessed to be in this wonderful and supportive "family."
Now onto the photos...because you just know I was so excited to capture some of these fun moments on film! And yes I have been playing around with picnik.com...so excuse all the random formats. :)
All the kiddos loved the rocking horse. And since we have really been working on the "my turn, your turn" concept (and signs), Max waited patiently. But he definitely let Maya know he was excited for his turn!
One of the girls had this cute lil' play phone and Max loved it! He even once attempted to say "hello!" Soooooo sweet! And yes, Max gathered all those balls around him. He loves to collect his favorite objects (blocks or balls usually) and stockpile them.
Max shared his love of blocks with Jeremy.
How cute are these two in dreamland? Notice Max has yet to let go of his beloved blocks? :)
Thanks again Sarah, Jeremy and Evan for the party and sleepover! We love you all very much. :)
7 comments:
What a lovely get together - It's wonderful that you have such amazing families nearby to connect with. Max is cute as ever!
So glad you were able to go and be with "family." As much as your friends try to get it, we all know that this family of friends "get it." So thankful you could relax, laugh, cry, and be encouraged with this group. Love the last pic!!! Bill's name seems to be poppin up a lot!!!! =)
great pics wish i was there
Can I just say how jealous I am you have so many other CHARGErs around you and you can all get together like that once in awhile. I love all the pictures.
Hugs,
Crystal and Eva
i'm glad bill was able to go with you to see and meet everyone else. how cool. love the pictures.
These are great! I'm so glad you have a group you feel so comfortable with. That's priceless!
I love that there are so many pictures of Bill and Max taking a nap together...I think you should make a whole scrap book devoted to that...what am I thinking? You probably already completed it!!!
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