the mighty max update: court and school updates

Tomorrow *could* be a big day in the divorce situation.

A month ago, we were supposed to have our day in court, but the other party got one case delayed and the Supreme Court didn't meet on the other. It was extremely frustrating. I had so hoped we would have some resolution. Maxwell is almost three, and we have yet to receive proper financial support from the other parent. Is this really still going on???

Sooooo...we'll see what happens tomorrow. The court may decide to not hear either case/both cases or hear the case/s and have/not have oral arguments. Lots of different ways this can go.

Another important meeting tomorrow is Max's third assessment with the school. We have a few other meetings, and then next week is his IEP. Several of his current therapists are going to attend with us so that the new team has a better understanding of Max's complex challenges.

Hmm, that too could be a big day in our lives. Let's hope for some really positive and encouraging news in both areas of our lives...wouldn't that be great?!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

10 comments:

Unknown said...: wow do you ever c the x at these hearings id like you to show him each thing max has and how hes walking and say he doesnt deserve him coz its ture; May 20, 2008 at 11:13 PM
Mary said...: I'm praying for positive news on both issues.

There is a possibility that next year we will have a female majority on our supreme court in WV. What a blessing that would be for mothers who are trying to support their children alone without any help from deadbeat dads.; May 21, 2008 at 12:38 AM
Carolyn said...: I'm sending up prayers. We are all here for the both of you.
Love,
Carolyn; May 21, 2008 at 4:38 AM
Crystal M. said...: I hope and prayer everything goes well all around.
Hugs,
Crystal and Eva; May 21, 2008 at 5:27 AM
Anonymous said...: sending up prayers and positive thoughts for you both...love you; May 21, 2008 at 8:41 AM
Eva and her 'rents said...: Yes, that would be great. Positive vibes coming your way--and lots of love!; May 21, 2008 at 11:05 AM
Sharon said...: Many prayers and good thoughts to you...; May 21, 2008 at 6:21 PM
Samantha Seholm said...: I will be praying for you and Max that everything turns out great:); May 21, 2008 at 8:10 PM
Pearl said...: Sent a prayer up for you guys today...hope all is well.; May 21, 2008 at 9:08 PM
Sarah said...: Wow he looks so good! Sorry we haven't been able to post comments in awhile. It is so good to see him moving without his walker. What a tough little guy. Please give each other hugs from us.

Love,
Brian, Sarah, and Caleb; May 22, 2008 at 9:20 PM

Tuesday, May 20, 2008

court and school updates

10 comments: