my trip to children's hospital

Mommy and I had a great visit to Children's Hospital on Friday. My pulmonary team was thrilled to learn I have avoided any extended hospital stays for over a year now. (Not sure if that would have been possible without the help of our nurses!) I am definitely getting stronger, but there is still concern why I get sick so easily. They said I don't have to be in strict isolation but definitely no "day care" or crowded settings for some time.

The nutritionist was ecstatic about how much I am eating orally! Plus she was relieved to learn the quality of foods I am enjoying! I am definitely a very healthy eater. (I guess that is the advantage to having reduced taste!)

I did really well with my hearing test, but no improvement in my actual hearing levels. However, my response ability had definitely improved and that was encouraging (cognitively). Mommy just loved watching me "perform" so well for the audiologist! Meg has known me since I was just a lil' wee baby in the NICU. She was amazed at how great I am doing!

The good news is that I am learning to work well with the hearing that I have...that's really all we can ask for, right? We ordered a new hearing aide and got new molds made. (That was definitely my least favorite part of the day!)

Enjoy the photos...Mommy is so happy to have our camera back! :)


Whew, we had an early start to our day. Perfect time for a nap! I think Mommy wishes she could join me! :)

















Here I am getting all "equipped" for my hearing test in the sound booth.

(Of course my walker is right next to me in case I need a quick getaway!)

Here I am showing off my response skills. When I hear a sound, I am to look at the toy to the left/right of me.











On the way home, we stopped at the outlet mall. This three way mirror is a dream come true!












How incredibly handsome am I in my big boy sweater? Those beautiful brown eyes and sweet lips...simply adorable, right?