the mighty max update: prayers for caleb

Monday, May 14, 2007

prayers for caleb

Our beautiful lil' friend, Caleb, is having a very difficult time right now. Please keep him and his family in your prayers.

Caleb is the baby boy who was recently transferred to Duke for a thymus tissue transplant. He has developed a serious infection and is considered to be in "critical condition."

I broke down in tears as I read Sarah's latest post. Caleb has been doing so well and this latest development is frightening for all of us who care so deeply about this wonderful strong boy.

1 comment:

Unknown said...: oh my god we all no wat that means for the imune people; May 14, 2007 at 11:43 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

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