the mighty max update: CHARGE get together

Friday, May 18, 2007

CHARGE get together

Our CHARGE family is getting together tomorrow, and everyone is so excited to see one another and celebrate our children's accomplishments! :)

Our last event was in early October and there certainly have been some major changes since then. I know Evan and Max are thrilled to show off their walker abilities! And Maya is officially walking with no assistance! Big big changes! Plus we have two more families joining us.

Thanks Rebecca for hosting this! :) Looking forward to seeing you all very soon!

4 comments:

Crystal M. said...: Have a wonderful time, somedays I want to move to Washington to be part of that wonderful group!!
Crystal and Eva; May 18, 2007 at 11:15 AM
Miss N Cedie said...: Give everyone our love! Wish we could be there. Cedie will be there in spirit.

Love the Mock Family; May 18, 2007 at 12:23 PM
CorrieYoung said...: Have to admit, I'm so jealous! How I wish the kids and I could hop on a plane and come visit tomorrow! Give everyone hugs from us here in MO.

Love,
Corrie; May 18, 2007 at 2:37 PM
Unknown said...: max when mums friend moves lout and wants a holiday to visit her firends bak in america im making her take me to c all my charge friends including YOU love u all amy u r one of the best mums i could knkow mums friend will have u on her list to take me to if she wants to go back for a holiday and takes me LOL i no im wishful thinking she probly wont have money lol she only just got paid otu today YEHAAAAAAAAa; May 18, 2007 at 5:44 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org