Well, I have learned that Wednesday's night of continuous vomiting and seizure like behavior might have an answer...."cyclical vomiting." It is neurologically based, not GI. One parent said she records her daughter's episodes and can track it to the week, nearly the day, of when it is going to happen. There is always much discussion within the CHARGE listserv on this issue, so I am looking forward to learning more from fellow families...the true experts!
Of course I will also involve the neuro docs. I am calling them on Monday to schedule a clinic appointment. Feels like we are living at Children's this month...we have so many appointments. What's one more? :)
Hopefully we will get some answers. While the neurological explanation definitely concerns me, it would be helpful just to understand better what is going on with Maxwell. That night was very scary and I don't look forward to the next episode....especially if we don't have answers.