the mighty max update: peek a boo mommy!

Tonight I realized I could play peek a boo with Mommy during "dinner." She was doing her happy dance for me (very funny and keeps me very motivated to try food!) and I wanted to join in on the fun. So I hid my face behind the wall, and then we would both lean forward to see each other. It was soooo great! :)

Here I am Mommy!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Wednesday, December 20, 2006

peek a boo mommy!

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