the mighty max update: drive in fun!

Monday, September 2, 2013

drive in fun!

I haven't been to a drive in movie theater since I was a wee one...and Max never has. So we joined some friends and family and headed to Oak Harbor for a night of fun! We started with go cart racing and Max thought it was just awesome. He signed "FAST" over and over again!

Then we enjoyed lots and lots of yummy movie junk food...and got settled in for a night of movies. Max was a little confused but excited about it all....and then fell asleep within the first 30 minutes. :) Too cute!

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org