As of this month, we are adding two more specialists to Mighty Max's team...neurodevelopmental clinic and the autism center. Yep, Max is going to be evaluated for the additional diagnosis of autism. Perhaps this expertise will provide much needed input into his behavior and communication.
"Autistic-like tendencies" are quite common for individuals with CHARGE Syndrome and Max is definitely no exception. But recently he seems to have really withdrawn even more and his OCD "quirks" are becoming more frequent. His communication has declined significantly and his behaviors have increased.
Quite heartbreaking to see such a decline in development. I know there will be an uphill soon...there has to be. It's a roller coaster ride, right?
Hoping I look back on this blog entry someday and joyfully realize how far we have come.