the mighty max update

Saturday, June 30, 2012

sweet pics with my man




Posted by amy and mighty max at 9:13 AM
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about me

My photo
amy and mighty max
Max is an adorable and inspiring nine year old boy who enjoys being silly, exploring the world and trying new activities. His favorite activities include long walks, tickle sessions, games on his iPad, pool time, playing with letters and words and conquering playgrounds. Born two months early and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and surgeries. Last year he was also diagnosed with autism and is involved in an intense ABA program to develop his social, communication and behavior skills. Max is an incredible fighter and has blessed many lives with his strong character, sweet giggles, and beautiful inner spirit.
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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

my friends and places

  • alexis
  • ben
  • burke
  • caleb
  • cooper
  • dylan
  • ellen
  • eva
  • eva claire
  • evan
  • gracie
  • jack
  • jayna
  • katie
  • kennedy
  • lucas
  • luke
  • luke s.
  • moriah
  • reuben
  • the troops
  • tommy
  • vivian
  • max's blog (july 05 - dec 06)
  • CHARGE syndrome
  • * sign language dictionary *
  • seattle children's hospital
  • arc of whatcom county

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