the mighty max update: the birthday bubble bash!

Saturday was Max's 7th birthday "Bubble Bash!"

Despite the rain, everyone had a great time...lots of our favorite people, good food and fun play time! Some kiddos even braved the rain to play with the bubbles. Thanks everyone for joining our celebration!

Fun to put together a "7" collage of some of my favorite pictures of Max through the years.

Max has become a big fan of chewing gum...so a bubble gum station was a must!
(The chewing helps reduce Max's incessant teeth grinding, plus he seems to really like it!)

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Tuesday, June 19, 2012

the birthday bubble bash!

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