the mighty max update: therapy time

We are blessed to have Max enrolled in Western Washington's Speech Clinic program. This quarter we have Miss Claire, and they have found an instant connection...very sweet. Today they worked on snack and activity choices, and that included chocolate cookies and music. Two of Max's very favorites! Thanks Gail and Claire for being such an amazing team for Max! :)

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Monday, April 16, 2012

therapy time

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