the mighty max update: birthday party fun!

Monday, March 14, 2011

birthday party fun!

We headed to Seattle this weekend for a special party for these two sweet twins, Judah and Levi...little brothers of Burkey, our friend in CHARGE.

Check out these two cutie patooties with their party hats...love it!

Oh and of course there is Mighty Max enjoying some yummy cake!

Maya's mommy, Marty, (we love you!) was so great about helping teach Max how to blow. He is definitely interested but hasn't quite mastered this skill yet.

And balloons are ALWAYS a favorite...you go Max!

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org