the mighty max update: summer shots

A good friend of mine is an amazing photographer who donates her time for The Arc's "Smiles of Life" calendar. I am always there for the photo shoots to greet the models, entertain, etc.

In between shoots, she often takes a few candids of me and my "special guest" (aka Max, Canella, etc.) of the day. I don't even remember her taking these of me and Canella this past summer, but I think they are so fun! Thanks Miss Lesley!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Sunday, December 26, 2010

summer shots

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