Mighty Max and I have sure been busy this past week keeping up with his appointments and getting ready for Tuesday's surgery.
1) Had our annual two-hour review with his DD caseworker regarding his medical coupon, health status and any developmental progress. We did a similar meeting a few months ago with the state nurse. Fortunately we have an amazing caseworker (seriously, we are incredibly blessed), but it still isn't easy (for a Momma's heart) to have to label all of of your son's challenges. Two hours of categorizing his needs...oh good times.
2) Another day...another ear infection...another dose of antibiotics. Boy am I glad he is getting tubes next week. He missed school most of this week, but *hopefully* he is feeling well enough for surgery. C'mon Max, this took a lot of planning!
3) For the past two weeks, I have been going back and forth with a few clinics at Children's to ensure his bloodwork results were acceptable to move forward with surgery. (There had been a few areas of concern that would have hindered his anesthesia success.) For whatever reason, there was mass confusion about who had what, etc. Fortunately, all is well...
4) Except...for his growth hormones. They are officially "abnormal" and have actually worsened since the last test. Darn. So the next step is a five-hour stimulation test to determine the next step. Most likely, he will start needing the hormones which will be administered via a daily shot...by me.
5) Last but definitely not least, we have run into some stumbling blocks with Maxwell's communication and that has been weighing heavily upon me. He has regressed considerably with his signing and speech.
I know that children (especially those with special needs) will go forward and backward with their development, but this latest setback really takes us back quite a bit. For example, I was watching videos from a year ago and he was doing MUCH better with his expressive communication than now. This "regression" has latest for several months now.
I know, I know, I know that I should be pleased with all that he has accomplished...and boy am I! It just can be very frustrating...especially with the all-important communication...to not understand what has happened.
His hearing has declined (but hopefully we will see a difference post-tubes) but not significantly enough to change speech or signing. It's like he isn't even trying right now...in that department. He definitely is trying and accomplishing many other tasks, but he just isn't into expressive language.
*Actually my favorite thing right now is that he WILL communicate quite easily when it comes to Blue Dog, Monkey, Santa, Cow...or his colored bins. He signs their names perfectly and quickly. Perhaps he simply isn't interested in communicating about anything else right now! :)