the mighty max update: "uh oh...momma"

Tuesday, January 20, 2009

"uh oh...momma"

7 comments:

Anonymous said...: love it!; January 20, 2009 at 9:57 AM
sarah and the troops said...: Oh, little Max, I am so happy you are feeling better, and you too Mama. I love hearing your little voice and seeing you sign. How beautiful you are.
Love from The Weg Family; January 20, 2009 at 10:25 AM
Stefanie said...: That is so neat to hear his cute little voice! Thanks for sharing.:); January 20, 2009 at 11:45 AM
Kristi said...: Uh oh, Momma! So CUTE! So glad he's on the mend!; January 20, 2009 at 11:54 AM
Carolyn said...: I love hearing your voice. I've got tears of joy.; January 20, 2009 at 2:36 PM
hannah m said...: That makes my heart soar, Max! Truly.; January 20, 2009 at 3:55 PM
Sandi said...: My heart just melted. I am so in love with you Max. Please influence Tommy and Liam to say mama.; January 20, 2009 at 8:42 PM

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org