The paperwork regarding Maxwell's condition/eligibility/therapy is truly neverending. The questions, forms, assessments, scores...yikes. It's never fun to read.
I have become much stronger the past few years, and I do my best to not get too worked up about it all. It's definitely more fun celebrating his progress. And I try and remind myself that a "score" is only that...a "score." It's not Max, it's not the lil' boy I love and adore. A score is simply a way to measure his development and help our team provide the appropriate services and therapy for him.
HOWEVER, I am still a mom with emotions. I am still a proud mom who wants everyone to see all the "wonderfulness" of Maxwell. I am still a mom who doesn't want everyone to be keeping "scores" on Max. I am still a mom who would rather be filling out paperwork for a daycare center, a sports team, or music class...than any of those I have received the past few weeks. Here are just a few:
- Speech evaluation (that one actually brought me to tears - truly frustrating how difficult it is for Max to learn very basic play and communication concepts)
- Renewal eligibility form for DDD (Listing your child's many developmental, medical, and behavioral challenges simply isn't easy or encouraging.)
- Extensive paperwork and meetings for the Medically Intensive Program (Max has been fairly "stable" recently, so we may lose services. Additionally many programs might be stopped due to major budget cuts.)
- Brochures, paperwork and services for the WSDS and affiliates
(I haven't mentioned this to anyone really, but Max recently qualified for the state's deaf/blind program due to his multiple sensory losses. I never envisioned my family being on the Helen Keller Foundation mailing list, but here we are.)
Oh yes, this paperwork can be a little difficult on a mommy's heart...no matter how strong you think you are.