the mighty max update: family is here!

Sunday, August 17, 2008

family is here!

Grandma Mary, my brother Bennett and his fiance Katy arrived in Bellingham today! They got here just in time for Thomas's birthday party...yay! :)

Fun party and Max enjoyed the yummy cake! And when all the kiddos were running around, Bill helped Max "chase" them. He didn't quite understand what they were all doing, but he still seemed to enjoy himself.

Happy Birthday Tom Tom! We love you kiddo!!! :)

3 comments:

Unknown said...: I've noticed Bill is a fixture in events and posts the past while! I am happy for you and Max! YAY!!!! ;)
Hugs; August 17, 2008 at 10:24 PM
Unknown said...: wow have fun i love u all; August 18, 2008 at 12:11 AM
Anonymous said...: have fun with family...love you..and thank you for the card..I got it in the mail saturday..it was so sweet of you..; August 18, 2008 at 3:29 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

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