the mighty max update: fun celebration (and cute photo shoot!)

Today was Miss Jayna's "two year seizure free" celebration! What a wonderful day to rejoice in all of Jayna's miraculous recovery and progress. We love you sweet girl! (Thanks again Sunshine for the beautiful flowers!)

While Mommy was busy with her friends and enjoying the celebration, our friend Bill and I had a great time climbing stairs, playing games, and making noise! And then of course when Mommy spotted us being so cute, she had to take some photos. :)

This ledge was awesome! I walked the "plank" and then we'd count to three and jump.

Perfect opportunity for a quick photo shoot!

And of course I always want a sweet snuggle session with Mommy! :) Those are the best!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Sunday, June 8, 2008

fun celebration (and cute photo shoot!)

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