the mighty max update: the essentials

Monday, May 5, 2008

the essentials

Got all the essentials...my blankie, my oximeter, and my baby blackberry. Life is good, very good.

6 comments:

Anonymous said...: Snug as a bug in a rug!!; May 5, 2008 at 9:24 AM
Crystal M. said...: Very cute!!; May 5, 2008 at 1:10 PM
Samantha Seholm said...: What more does a super cute kiddo need:); May 5, 2008 at 1:45 PM
Evil Twin's Wife said...: Sooo cute! I always think toddlers look like little angels when asleep - thing is, Max looks like an angel all the time. Such a sweet li'l face. :-); May 5, 2008 at 7:11 PM
Mary said...: Oh, if I could only kiss those sweet cheeks.; May 5, 2008 at 8:37 PM
Unknown said...: hes getting long arghhhh; May 6, 2008 at 12:43 AM

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org