the mighty max update: meet my good friend eva!

This is Eva. Isn't she a cutie patootie? :) We used to go to therapy playgroup together, but now she is a "big girl" and goes to preschool. I can't wait to join her! :)

She is super smart and impresses me and Mommy all the time! Her vocabulary is incredible and soooooo "with it." She calls both me and Mommy by our names...how cool is that!?!?

We love you Miss Eva and are so very proud of you. We are blessed to know you and your family! :)

Eva has perfected her scooting...very cute! AND she is also learning to walk. Go Eva Go!

She seems to share my love of this fun toy!

Trying to drink out of a straw...wow! This totally caught Mommy's attention! You sure have lots to teach me Eva!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Tuesday, March 25, 2008

meet my good friend eva!

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