the mighty max update: fellow "g tube families"...this is for you :)

Friday, December 14, 2007

fellow "g tube families"...this is for you :)

I came across this today and it made me smile. We have all encountered similar situations and wish we had said something...well she did! :)

2 comments:

Inkling said...: Amy, thank you for sharing this. Actually, it was the most fun surprise I've had in a long time. I followed the link only to discover that Braska's mom is a woman who went to the same college and lived in the same dorm I did. We'd lost touch years ago, and it was fun to have a chance to get back in touch.; December 16, 2007 at 12:17 PM
Unknown said...: wow and think ive seen that mum on ur blog posting i c what she means some of those others take stuff forgranteddotn they arghhhhhhhh; December 17, 2007 at 10:01 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

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