One issue that often comes up is his need for oxygen and the Gtube. The O2 discussion is always so complicated...how in the world do you explain why a kiddo would need supplemental oxygen?
But the Gtube? Pretty easy...and most children actually think it's really cool. I really act excited about it so that they will too, i.e. "How cool is this? Max can keep playing while getting fed!"
Tonight was hilarious. We went to a picnic at a friend's house and all the kiddos just adore Max. One of the girls was asking about the Gtube extension, so I showed her. Quickly all the kiddos gathered around and wanted their turn to help "feed" Maxwell.
How cute are Max and his "helpers"? We are so blessed to have this unique group of friends!


3 comments:
OMG You brought tears to my eyes and I don't know why, seeing other kids want to help and learn is just amazing to me.
Plus being an over emotional person doesn't help either...lol.
Hugs,
Crystal and Eva
Great pictures. I love Max's expression and all the kids helping. The innocence of kids amazes me - they help us get through the challenging times. Thanks for posting this!
Love,
Rebecca
Cameron and Nathan's mom
Amy, He is looking like such a big boy! Hanging out with friends...that is so great!!
Give him a big hug for me!
Love Jenn
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