Thank you so much everyone for your concern. The emails and calls have been very appreciated, and I apologize for not getting back to everyone personally.
Nothing "new" is wrong...quite honestly, we just have been incredibly busy, overwhelmed, tired.
The great news is that Maxwell is finally starting to feel better. Yay! :) We did have to resort to Prednisone earlier this week (which makes him completely bonkers) and brought him back to the doctor again yesterday. His lungs are sounding much better and his congestion is lessening. A few days ago, there was some serious concern because his O2 needs were way, way, way up there. Higher than the O2 tank would even go. Sure enough his narrow (choanal stenosis) nasal passages were blocked with some serious "plugs." Not an easy night...but luckily I was able to solve that problem without a hospital admittance. I was very close to bringing him to the ER that night.
Beyond our typical busy schedule of therapy appointments and doctor visits, I have been running around (mentally, physically, emotionally) trying to come up with ways to make ends meet. The thought of losing our home (which quite frankly is a real possibility at this point) is very scary and frustrating. Not quite sure how we are going to do this, but I am determined to find a way and overcome this financial disaster caused by the divorce order.
Today was also the official filing day of our appeal. Lots and lots of money and work going into that...hopefully it is worth it. Overturning a case is extremely difficult, but there were some very obvious errors in this case. So we are trying to remain hopeful. I just cannot accept that the court system is this flawed.
That's about it. Oh and yes...very important update...the master of beautiful curls got his hair cut big time today. And let me tell you, he is one incredibly handsome, grown up lil' man. Wow. I'll try and get a photo tomorrow. :)
* Last but not least...what a busy week for our CHARGE gang! Congrats Caleb on your successful journey to Duke. Sounds like you and Mommy have been very busy with all your tests. Maya, we look forward to learning more about post surgery recovery. And way to go Eva on handling all those EEG wires!