the mighty max update: prednisone, antibiotics...again?

Tuesday, February 13, 2007

prednisone, antibiotics...again?

Yep, the past few days have been difficult on Mr. Max's body. While this bug hasn't stopped Max from playing and having fun, it has definitely impacted his lungs. He has been getting "junkier" every day. We have been giving the breathing treatments every four hours and lots of CPT (clapping of the chest and back to loosen the congestion). The nights are the worse...he wakes up in major coughing fits and his O2 needs have increased significantly. And unfortunately all the coughing leads to vomiting.

So today the doctor put him on another 10 days of antibiotics and prednisone (steroid that makes him a bit manic...funny videos to come I'm sure!).

Last night I requested a night nurse (she was able to come, yay!) because I knew the night would be rough (and it was) but no nurse tonight. But I can handle one night of no sleep...no worries. Mommy love is the best remedy for feeling yucky anyway!

Anyway, hopefully the medication will kick in quickly and this bug will be kicked to the curb. Meanwhile, here are some super cute photos of Max in the doctor's office. We had 45 minutes waiting time...but no worries. We were just happy to get an appointment right away!

Here Mommy, I'll share my keys with you. They are super fun!

I'm SOOOOO big!

PEEK A BOO! This is one of our very favorite games. Mom makes me use my voice for her to "find" me. (Our speech therapist says I need to work on using my voice on command versus just whenever.)

Again Mom?

Ok, time for a photo shoot with Mommy! You know how I love the camera...and I just love the mirror at the doctor's office.

11 comments:

Crystal M. said...: I hope you feel better big guy, it stinks to be sick.
Hugs and kisses from Eva!!
There is a new really funny video on her site maybe it will help you feel better.
Hugs,
Crystal and Eva; February 13, 2007 at 2:08 PM
Unknown said...: oh Max,

I'm so sorry you're sick. You sure don't look it from your pics but we'll take Mommy's word for it. Sometimes I wonder who it's harder on when you little CHARGErs are sick. You guys cough, gag throw up and then give a sweet smile. While us mommys worry, worry, worry and don't sleep!! We used to sing," I puck my guts out, but i get up again, you're never gonna keep me down" for that "I get knocked down" song to Pey.Ha! You guys are just little energizer bunnies that,unfortunately, don't know any different!! Hope this goes away soon......we'll pray that it does.

Love from MO,
Corrie; February 13, 2007 at 3:48 PM
Mary said...: Precious Maxwell, I am so sorry you are ill. I hope the meds work fast. You and Mommy need to rest at night so you can have fun days.

I hope you and Mommy will have a healthy, happy Valentine's Day.

Love,
"Auntie" Mary; February 13, 2007 at 8:22 PM
Anonymous said...: you crack me up sweetcheeks. I love ya.

Hope you and mommy have a great valentines day..Thank you again for my special card.; February 14, 2007 at 12:36 AM
Diane said...: Oh, I hate it when you are sick. Poor baby, You certainly are so big and cute as always.

Get better soon.

Love,
Diane and Alex; February 14, 2007 at 9:38 AM
Anonymous said...: What a wonderful mommy and Max photo. I am sorry he isn't feeling well. Elainah is going through another round of upper respiratory infection again too. I hope Max is on the mend.; February 14, 2007 at 12:24 PM
Evil Twin's Wife said...: Max, I hope you are feeling better soon! Have a wonderful Valentine's Day. :-)
Rosemary; February 14, 2007 at 1:54 PM
Anonymous said...: I wish my kids were that good waiting for the doctor! Glad to see you're in good spirits, little man!; February 15, 2007 at 7:27 AM
Anonymous said...: Oh Max (and Amy) I am so very sorry you are not feeling well. I hope that by this writing (just after midnight on the 16th) that you are feeling LOTS!!! better. Hugs to you both

jennifer; February 16, 2007 at 12:17 AM
Amy, Mike and Ben Russo said...: Max - you are so cute even when you are sick! Hope you feel better soon.; February 16, 2007 at 4:10 AM
Unknown said...: and u no how much i love my chargers pls dotn leave us max pls pls; February 16, 2007 at 6:18 PM

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charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

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