I talked with Cedie's father today and learned that she passed away just a few hours prior. It was a very difficult and emotional conversation. They are trying to focus on how many wonderful moments they had together, including a perfect Christmas.
That's the odd part about all of this. Everything with Cedie had just started to "click" (as her parents described) and she was really making progress with strength, eating, crawling...and then suddenly she is gone. It has been an incredible shock to all of us.
Cedie, I am heartbroken that we did not have the opportunity to meet quite yet. I followed your progress and your struggles every day and felt like you were Max's distant sister. I have shed many tears this week and will continue to do so. You are a beautiful, strong little girl who truly was loved by your parents, brother and everyone who knew you. Thank you for sharing your life and your magic with us. We love you, Amy and Maxwell
Below is the post from Cedie's blog:
Our Little Angel
Our little angel went to Heaven around 9:30 this morning. She was a very special little girl and she touched so many lives. We will always cherish the memories she left us with. She was a very happy baby and we wouldn't trade the last 18 months for anything.
Dylan (her 5 year old brother) wrote this song back in July 2005 after her first set of surgeries:
Cedie, Cedie I love you
Cedie, Cedie I love you
Pick some flowers For Cedie
Won't you come home soon
I will never forget this song or her.
We would like to thank everyone for their prayers and support. It meant so much to us to know how loved our daughter was all across this world.
12 comments:
i love that song he wrote i no u no it can often b the case with so many of the little ones i pray and hope max lives to b a ripe old age befor he passes love u all
Amy and Max,
I feel the same way about Cedie and all our little CHARGErs. I also posted about her on Eva's site and its hitting me quit hard. She was such a sweet dear little girl and I hope they find out what happened and how the switch just turned off. She was doing so great.
Hugs,
Crystal and Eva
Amy and Max
My heart aches and I have broken down just bawling. I'm praying for Chris Jennifer and Dylan and all of the fellow charge community members.
Love to you
Ang
I checked the blogs many times yesterday and today for an update on Cedie. My heart aches for Cedie's family as well as all the families of CHARGErs. I am sure it is very personal for each of them too. I pray that Cedie's family finds comfort in knowing that Cedie went from their arms to the arms of Jesus. Her beautiful spirit is now free from the shell which caused her such problems.
January 5, 2007
Amy and Max,
Thanks for sharing the news of Cedie. What a beautiful little baby girl she was. I feel for the family. I looked at her Christmas video and cried like a baby. However, what wonderful memories to have shared together. It is so sad to lose a child, but she was so ill. She is now an angel looking over us all. What a sad day for the family. Our thoughts and prayers are with all whose life little Cedie touched. Bless all the CHARGErs and their wonderful families.
Love,
Diane and Alex
I am so sorry to hear about Cedie. It's so heartbreaking. My heart goes out to her family and all who loved her.
I'm so sorry to read about sweet Cedie. My heart goes out to her family. It's just so sad, there aren't words...
I actually felt my heart skip a beat as I read the sad news. I hope Cedie's family knows just how much Cedie accomplished in this world, besides her own triumphs, she made all that knew of her sit down and think about our gift of life, and what we do with this gift. Her presence (and now abscence) had and will continue to have an impact on all of us.
So terribly, terribly sad to read this tonight. My heart and my prayers go out to Cedie's parents and especially to her 'big' brother in this unbelievably painful time. There aren't words to do justice to how this sweet child inspired so many who never even met her and how much she will be missed.
Oh! My heart and prayers go out to this family. You too.
Kristy
I can't even imagine. Please let them know that I send my deepest sympathies and regards. My heart and prayers go out to them.
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