the mighty max update: lovin' my orange pop

Sunday, January 5, 2014

lovin' my orange pop

We rarely have soda in our house, but we have quite a bit leftover from Z's sleepover this weekend. Max definitely is more interested in drinking fun sodas than boring ol' water so I always look forward to his reaction. Twice I found him carrying around his drink this weekend...and it was awesome. (He still uses his gtube for 95% of his liquids.)

"I was heading upstairs with my ipad and I almost forgot my drink...yikes. Had to come back for my yummy orange pop!"

1 comment:

Carolyn said...: Max, you sure are getting taller.; February 26, 2014 at 4:09 PM

Post a Comment

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org