the mighty max update: christmas eve cookie decorating

After church on Christmas Eve, Eliz's family joined us for hot cocoa, cookie decorating and reindeer food. I was quite surprised to see how good Max was at icing! Check out his tree outlining...wow!

And here is a photo taken by Max...Zoey was writing her note to Santa. (her first time!)

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Thursday, December 26, 2013

christmas eve cookie decorating

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