the mighty max update: camp sealth (#3)

The horses were my absolute favorite part of the weekend!!! Max held on and did great. WOW! We are definitely going to be looking into hippotherapy again. (Max did this a few years ago but wasn't quite ready for it.)

Love this pic of these adorable boys eager to get on their horses!

Hi Cooper!!! Could you be any cuter? :)

We decided we all need some relaxation and quiet time, so we headed back to our cabin. Despite some fun card games and funny photo shoots (courtesy of Cooper)...Max was bored. (see below)

Is that the cutest bored face or what?

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Monday, May 27, 2013

camp sealth (#3)

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