the mighty max update: musical chairs

I love games...love...love...love games. But with Max and his buddies having such a wide range of abilities, I always want to make sure EVERYONE can participate and enjoy themselves. Fortunately musical chairs was a big success. Everyone had fun...and everyone got a prize!

Some of the kiddos started playing quite seriously.

And so did some of the adults! Cooper and his very competitive grandma took on Drake, and it was hilarious!

Is Liam not the cutest dino you have ever seen?

And there is that silly Monster Cat again...love the hair buddy!

charge syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.

For more information, visit http://www.chargesyndrome.org

Saturday, October 29, 2011

musical chairs

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